Here at The Local Food Festival, we like to help out Locally as much as possible, and that is the driving factor behind charities and organisations we support and work with. So people who come and enjoy our festivals can contribute to things around them.
The Charity we are supporting over the coming years is CDG UK.
CDG UK supports children and families affected by Congenital Disorders of Glycosylation, by educating people about this group of rare diseases, providing grants for specialist equipment and funding research.
Congenital Disorders of Glycosylation is an umbrella term for over 170 different types of genetic disorder in the glycosylation pathway. CDGs are extremely rare but can have devastating effects on the body. As glycosylation takes place in all organs including the brain, CDGs can cause a lot of problems with important functions such as mobility, feeding, growth and cognitive development. 20% of children born with CDG do not live beyond their first birthday. As a charity, we aim to connect our families to the best information as well as to each other for support.
Every year we host a ‘Meet the Experts’ event, where families can ask questions to clinicians and researchers in the small world of CDG. We also give grants to families in need of items such as equipment or special toys. We also aim to raise awareness about CDG so that in the future more researchers may work on treatments or even cures.
How We've Helped CDG
A HUGE THANK YOU
To all of our donors, we cannot thank you enough. Look what you did! With your generous donations we held our biggest event ever, connecting our CDG families with each other and with the experts. We held a two day CDG UK conference in Stratford-Upon-Avon and families heard the latest updates in the world of CDG from experts such as Stephanie Grunewald from Great Ormond Street Hospital, Peter McWilliams from Glycomine Inc., and Dr Eva Morava from Mayo Clinic in the US. Some of our families had never met another CDG family before, and everyone was incredibly grateful to share experiences, and make new friends. We could not have done it without the help of our wonderful donors. From our regular donors who contribute every month, the church groups who allow us to present to them, the people who raise funds on their birthdays, the people who donate on Amazon smile, the individuals who run marathons or walk the Cotswald Way, the people who wing walk on aeroplanes, the local pubs who put our collection tins out, the teams who attend our quiz nights, the companies that choose us as their charity of the year, the amazing Steve O’Neill from The Local Food Festival who paints his bum green on a regular basis, and our umbrella charities that give us grants for our projects.
We would like to send you A GIANT THANK YOU. You have genuinely changed lives and helped our CDG families. Your energy and passion is remarkable. Hats off to you all.
An Evening with Kerry Dixon
On the 26th of November we held an evening with Chelsea Legend Kerry Dixon to help raise funds for CDG UK. On the night we raised £565
SURPLUS to Supper
Surplus to Supper are bridging the gap between food waste and food poverty locally. Surplus to Supper is a non-profit Charity - Charity No: 1189230. They are becoming part of the Surrey and the surrounding areas’ network of charitable food distributors. They take good quality surplus food from right across the food industry and get it to Frontline Charities and Community Groups. Food becomes surplus for a myriad of reasons from packaging errors, to short date coding or cosmetic imperfections and they follow stringent policies and procedures for storage and transportation to meet all food safety legislation. They are doers and change lives.